The Dignity of Risk

I am part of a group preparing materials on living with chronic suicidal thoughts. We group members are made up of mental patients like me, family members of sufferers, and specialized clinicians. As I’ve written about before, as a Recovery College project, our task will be to create a “course” that interested parties can “study” online. So far, we’ve had three online meetings. I think it’s going well.

What I wanted to write about was a concept that was introduced during the second meeting. It was new to me and struck me as being of great importance. This is the notion of the dignity of risk. The idea is that, if a person’s support group (whether official, as in a clinical setting, or informal, out in the world) “rescues” a mentally ill patient from all genuine risk, the group thereby robs the patient of dignity.

A “normal” adult, in the everyday course of things, will constantly undertake tasks where they can fail; and such that they thereby suffer some bad consequences. Indeed, neurotypical folks regularly do things that could have very serious consequences – consequences such as getting hit by a car, being knocked over into traffic on one’s bike, getting serious food poisoning, etc. Living with such risk is simply part of being a grown up. In contrast, we don’t allow infants to even attempt the genuinely risky.

What’s the difference between the “normal” adult and the small child? Among other things, it’s that the former can be trusted to make reasonable choices about which risks to incur, whereas the baby can’t make wise decisions on its own. Now consider, in this context, attempts to save people like me from failure – whether that be just serious failures, or even the modestly risky. On the one hand, protecting folks like me is an understandable impulse, based in level-headed concern for the mentally ill person’s welfare. People who love me ipso facto want to protect me from harm. On the other hand, to shield a loved one from all risk, even all serious risk, is to literally infantilize them. It can be, in short, a way of robing the patient of their dignity as responsible adults.

Respecting a person’s dignity thus brings with it allowing that person to take serious risks. I have been pondering this realization for days, on two fronts.

First, there’s obviously a question of balance hereabouts. Pondering the first, part (a): there’s the dimension of how mentally ill the person is at the time. Speaking for myself, when I’m really bad, I simply can’t be trusted to make appropriate choices. In fact, my decision-making has sometimes been so irrational that it’s been necessary to lock me up. In such scenarios, maybe infantilizing is the right stance. Pondering the first, part (b): there is the dimension of how big the risk is, and how large the consequences of failing. As an example, given that an overdose of Nortriptyline would be fatal, it likely makes sense for my family and friends to dispense that medication to me only a week’s worth at a time. Arguably the resulting harm to my dignity is worth it. (It was precisely in the context of a potential for suicide that our working group touched on the dignity of risk, by the way. When should we protect a loved one who is running the risk of “failing” in the sense of killing themselves? How suicidal is too suicidal to let them be? That’s a really tough question.)

Second, I’ve been thinking about the dignity of risk in relation to another phenomenon, namely my on-going “upwards spiral”. Part of the reason I’ve been improving, I think, is that I have felt confident enough to take on more challenging tasks; I’ve succeeded in those; and this has made me even more confident; which has encouraged me to take a still bigger risk; etc. Such a positive spiral inevitably brings along with it, however, the possibility of failure, even major-league failure.

If our little group figures out precisely how to balance autonomy versus potential failure, I’ll be sure to share the result here! Meanwhile, I’ll keep pondering the dignity of risk.

Doing Better, But…

I have been doing better since my hospital stay in the Spring. Seven weeks on the psych ward at Victoria Hospital here in London, ON, seems to have really helped.

Numerous friends have asked me what has been making the difference. I thought I’d post something about that here.

I think the first really important change is in medication. The run-of-the-mill anti-depressants had stopped working for me. So, my medical team at the hospital decided to try something unorthodox: they put me on an old-fashioned drug called Nortriptyline. Invented in 1963, it’s one of the first-generation anti-depressants. It had fallen into disuse after Prozac and the like SSRIs were developed, because it’s lethal in overdose. Hence, it’s not a drug you want suicidal people having ready access to. But things were desperate, so they tried me on it. To make sure that I don’t overdose should I have a really suicidal day, my wife Anita stores the pills in a hiding place, and only gives me three days worth at a time. It’s a bit of a nuisance for both of us, but it makes good sense safety-wise.

Another factor is an “upward spiral”, as I call it. I am feeling much less scared, and more competent, so I take on somewhat harder tasks. When I succeed at those, that makes me feel still less scared and still more competent. So, I take on something even harder. And so on. So, for instance, I was able to travel north for a fly-in fishing trip in June with my friend Emily. Long-time readers will know that much chaos ensued. Yet I kept it together. Next time, I flew up north by myself, and even spent several nights on my own back at my endearingly creepy motel in Nipigon. Another example. In August I went to a major philosophy conference in Rome, though I didn’t present anything. In October, I’m going to another conference, in St John’s Newfoundland, and this time I will be giving a talk.

The third thing that really helped me improve, I think, was the Summer weather. Sunshine, warmth and being active outdoors are all very good for my mood, including in particular the ability to overcome emotionally trying events. I just seem more psychologically resilient between May and August.

This leads me to a current worry. That “But…” in my title. I am afraid that the change of seasons may throw me back into really serious anxiety and depression. Currently, I am trying to find ways to reassure myself. Three things may help. First, I am back teaching. I’m even writing: yesterday I completed a draft of a sole authored book review, the first in a long, long time. Success at work should help me make it through. Second, I am planning trips to warm, sunny places over the winter months. That’s not going as well as I’d like, as so far I only have one trip planned, viz., to give a plenary lecture in Montevideo in December. But I’m hopeful that other opportunities will present themselves. Third and finally, I am trying to emphasize to myself the fun things that I can do during Ontario’s winter. I got up on skis last year; maybe I can do that again, only more frequently?

Learning to Live with Suicidal Ideations

In my last post, I posed the question what’s “well enough” to leave the hospital. I said that a necessary condition was getting over my suicidal ideations. I wrote: “Until I can stand on a bridge without being aware of the opportunity it affords for suicide, I don’t think I’m ready.”

Yet, here I am at home, still having suicidal thoughts. What happened?

It turns out the medical team at the hospital were focused on a different question, namely, how much can they help? They concluded two weeks ago that I had benefited as much from hospital care as I was going to. In particular, they reasoned that medication adjustments were unlikely to take away the suicidal ideations altogether.

Now, the psychiatrist who broke this news to me asked what at first seemed a deeply puzzling question, viz., why was I so disturbed by suicidal thoughts? To me, that sounded like the question why I find pain distressing: both are things which are per se unpleasant. Surely, I thought, he must never have experienced a “suicide affordance” if he can ask why they are so unwelcome. Our conversation continued, however, and it emerged that there are thousands of people who have chronic suicidal ideations but who have learned to mentally distance themselves from those thoughts. Said the team, I’d have to learn to live with them as well, not letting them bother me so much. (How very Buddhist…)

My dear friend Gustavo noted that this is somewhat like game theorist John Nash, who famously suffered from schizophrenia his entire adult life. Nash wasn’t helped by medications. Instead, as he put it, he gradually began to intellectually reject the delusional lines of thinking. His voices didn’t go away; rather, he somehow managed to consciously resist them.

In the two weeks since I left hospital, I’ve been working on creating the requisite distance. My current technique has three steps. First, I identify the suicidal thought. I’ve given it the name ‘Sue’ for suicide. Second, I note that Sue is an intrusive thought, which comes to me unbidden and from a malfunctioning part of my brain. Third, I stress to myself that Sue fits ill with my overall values. Sue, in short, isn’t me.

It isn’t easy living with Sue, but maybe I can manage it.

Despondent

It is May 1st and I am still in hospital. I’m feeling despondent. I thought I would be going home yesterday for good, but my psychiatrist on the ward doesn’t think I’m ready.

He’s right. I’m as suicidal today as I was on the 26th of March, the day Dr. D had me brought to Emerg.

I have missed April entirely, stuck in hospital, and who knows how much of May will pass me by? And it feels like the Spring has been wasted because I’m not better.

Though I felt sad all day today, I didn’t collapse into sobs until the afternoon, when I went for occupational therapy, specifically “cognitive task skills”. I was walked to a room by a kind OT and was tasked with sanding a wooden heart and then painting it the colour of my choice. I thought: What have I become, that the skilled task I can accomplish, and thereby increase my self-esteem, is to sand and paint a wooden heart?

That reflection on my changed circumstances stayed with me all day. I kept thinking of how rich my life once was, and how little is left of it. I was a beloved dad, a terrifically successful academic, a bright and funny person who was entertaining to be around. Now? I’m tasked with pointlessly sanding a wooden heart.

I’m reminded of the Aristotelian line of thought that a life can’t be properly measured for happiness until it’s done. Happiness is an average over a lifetime. What sometimes inclines me to suicide is the fear (the realization?) that what has been a mostly happy life will become an unhappy one over all, if I live like this for another 30 years. Wouldn’t it be better to end on a high-ish note?

I know that I am loved. My previous life has made me so. And feeling the love keeps me from… drinking the radiator fluid, cutting my wrists with the kitchen knife, getting into the bathtub holding an electrical appliance, jumping off a bridge, throwing myself in front of a bus, etc. I stay alive for others. But I feel so hopeless on this first day of May.

A Month In Hospital

I’ve been in hospital for a whole month. The bad news is I was brought in feeling very suicidal; the good news is that I’m feeling better. In this post, I’ll explain how I got here, what it’s like, how I’m doing these days, and what the game-plan is going forward.

I had my monthly meeting with Dr. Desjardins, my psychiatrist, on March 26th. She concluded that I was too suicidal to be safe at home and arranged to have me brought to Emerg at Victoria Hospital. I spent 47 hours down in Emergency, seeing at least three doctors who all concurred with Dr. Desjardins. At this time, I was issued a “Form 1” which allowed the hospital to detain me for 72 hours. I then spent about a week in what Saima labelled the “holding cell” (i.e., the detox and stabilization unit). Then as soon as a bed was available, I was brought to one of four additional longer term psych wards. For three weeks, “home” has been the 200 block of the 7th floor of B wing.

Regarding what it’s like, I think I can sum up by saying that the weeks fly by, but the days are so slow. I spend my time reading email, the newspaper, non-academic books; doing phone calls and video chats with friends and family from afar; receiving lots of visitors (for which I’m immensely grateful); and pacing the hallways with those co-patients who are verbal, and largely mentally competent. (There are about a dozen patients on my ward, about half of whom are able to maintain a conversation. A couple of co-patients from up here and from the “holding cell” have, indeed, become real friends.) I also eat a lot – seemingly all the time. The food is bland, but eating makes the time pass.

I am trying two drugs that are new to me. Nortriptyline is a tricyclic anti-depressant first used in the early sixties. It’s not popular nowadays – that is to say, after the development of SSRIs like Prozac and Zoloft – because it’s lethal in overdose, hence not given lightly to suicidal patients. If I stay on it post-release, I will be given only a week’s worth of pills at a time. Quetiapine is an atypical anti-psychotic which is deployed off-label for anxiety. It’s also a powerful sleep med. The combination of the two seems to have left me calmer and more stable. I have even had a positive outlook for the last few days. I’m hoping that’s a matter of cause, i.e., that it’s the pills that are actually helping. The alternative hypothesis is that merely being in hospital, in an entirely stress-free environment, is what has me feeling better; and this happens to correlate with starting new drugs. That would be unfortunate because then I’d presumably revert to my very suicidal state when released.

Speaking of release, the current plan is to discharge me on Tuesday, April 30th, 2024. By then, Anita will be home from the Dominican Republic, so I won’t be alone in the house. And I will be on a full dose of the two new-to-me medications.

I urgently need to find things to keep me busy once I’m home, as my Summer class on early Buddhist philosophy was cancelled, due to low enrollments and my troubling state of mental health. Suggestions for how I can spend my time are very welcome. So are invitations to visit!

Anxiety is so hard…

My anxiety continues to be really hard. I had better days on Sunday and Monday, and this morning was okay too. Then afternoon came around, and bang… I can hardly function.

It’s a downward spiral. I am anxious, so I find it hard to work; finding it hard to work, I think about impending deadlines and about the fact that I am having trouble making them; and that makes me more anxious. Relatedly, I don’t just get first-order anxiousness. I doubt anyone does. I get worried about the fact that I might get anxious.

I find it so hard, too, that there isn’t a magic pill that takes the feeling of anxiety away. I’ve reflected often that maybe some people are alcoholics because they feel like I do now, when they’re not drinking. That would keep me on the bottle, I think. Ditto for benzos. Sadly/happily, neither booze nor Ativan make me feel better, so addiction isn’t in my future.

That nothing seems to work causes suicidal ideations. I think: “I can’t live 30 more years like this. So, I need to end it.” And I visualize myself taking a fistful of pills. They’re just passive ideations. I’m not actively suicidal. But this is another hard aspect of anxiety.

Argh.

Battling Winter Depression

I’ve never been especially fond of Winter. It’s always been my least favourite season. But the last few years, my Winter outlook became pathologically bad. “Really suicidal” bad. I became really afraid of Winter.

In collaboration with my docs, Rehab Services at Western U, my Dean and Chair, we worked out a plan. As an experiment, and as part of a Return to Work program after my ECT treatments, I would go to half time at Western, and I would teach in the Fall and Summer and not in the Winter term. This would allow me to do work and other trips to warm and sunny places during December, January and February.

The experiment is underway.

In December, I attended a really wonderful workshop in Uruguay and also had lots of time with my extended family there. It was hard being away from Anita, my wife, for three weeks. But I did really well — hardly a suicidal thought; and my anxiety, though it showed up daily, was manageable with regular meditations. I didn’t take any benzodiazepines the whole time. (On my way home, I also had some really productive meetings with a colleague in Florida. He helped me sort out my Epistemology class for next year.)

Right now, I am writing this from Bogota. I am down here in Colombia to meet with students — potential grad supervisees! — and to give a talk at Universidad de Los Andes. Again, what with 28 degree weather, my mood is massively better than this time last year.

The obstacle that I need to really keep on top of, which I’m sure faces people who are new to working at home too, is to remind myself regularly that I am not on vacation just because I’m in a warm and sunny spot and working only 20 hours per week. Yes, I can sit outside in the garden in Bogota or Montevideo or Tampa, but I need to be reading about the ontology of words or some such! It has been helping to have lots of things on my calendar: meetings with students, reading groups, committee commitments, etc.

The experiment continues next month with a second trip to Uruguay and some talks in Buenos Aires. Then I’m finally home for March and April, with teaching starting up in May. I’ll keep you posted on how it all goes.

List of Good Things

One simple tool for combatting depression in general and suicidal thoughts in particular is to rehearse good things in life. Not just great big good things, like success in one’s career, but little tiny ones too.

It was homework from Mindfulness-based Cognitive Therapy weeks and weeks ago to begin my own list, but I have been super busy being back at work. Well, I’m finally getting to it. So, here’s my very partial list, and in no particular order.

Kissing Anita, my wife; or just hearing her breathing beside me

Mindfully sipping my coffee

Listening to music

Phone calls and video chats with friends and family

Reading philosophy on my front porch

Running, especially with a partner

Spotting an interesting bird at my feeders and on walks

Fishing of all sorts (Of course!)

Teaching and time with students

The cats sitting on my lap

Crawling under the covers when I’m sleepy

Travel

Eating out at restaurants

Literary fiction

Helping people

Cutting the grass

Watching TV with Anita

Grocery shopping with my daughters Saima or Moon

Hot water on my shoulders and head in the shower

Bonfires in our backyard

A shortage of multidisciplinary practitioners

Here in London, and in Ontario more generally, there is a severe shortage of clinicians who are willing and able to both track patients’ medications and provide psychotherapy.

This is not an accident. It’s part of our biopsychological machine: it’s built right into Ontario’s funding formula and the emphasis on meds.

The easily predictable shortage matters to us all. But it’s especially pressing for people like me, because my mental health troubles were over-determined.

My Bipolar Disorder is grounded in a genetic predisposition. There are good reasons to believe that there was something atypical about my brain from the get-go. There’s family history. And there were early signs such as an attempted suicide as a pre-teen, along with what I now recognize to have been hypomanic periods in my final years at high school

I also lost my beloved first wife Hamila to cancer in my late 20s after a five-year illness – three surgeries, repeated chemo and radiation therapy, and the slow breakdown of her extraordinary mind and beautiful body. In addition, I suffered pretty severe childhood trauma. (I don’t blog much about that, out of respect for the privacy of others. But one episode illustrates the interplay of the twin factors. When I made an inept attempt to hang myself as a boy, my father found me – and beat me for not appreciating how economically fortunate I was.)

Either factor likely would have required remediation. In the event, their intersection led to my first serious breakdown at 28, about six months after Hamila died. I was unable to care for myself, or even to speak. I just spent hours rocking on the floor in my Boston apartment, in a near catatonic state. (My (mis)adventures with medications began about then.)

Here’s the impact specifically on me of the shortage, looking forward. As this blog attests, talk therapy in the form of DBT has really helped, and it can help still more. However, my condition is almost certain to be chronic and permanent. I’ll likely never be fully functional without powerful medications or brain stimulation. I’ll die taking them. So, I – and folks like me – desperately require multidisciplinary practitioners.

That’s just what our system discourages.

[Correction: I fear that what I wrote suggests both that all practitioners should be multidisciplinary and that all should devote hour-long sessions to their patients. That suggestion would be wrong and unfair. Specialists are very important. And many mental health professional make the hard choice, based on ethical deliberations, that it’s better for them to take on more patients, given the severe shortage of psychiatrists.]

Postscript: My latest homework from Dr. D – to whom I’m very grateful, by the way, for choosing to treat patients at great cost to herself – is to try to disentangle the effects of my early/adult life traumas vs. the effects of my peculiar brain chemistry and circuitry. The aim, in part, is to help tease out the bits of mental illness (tracing from either or both) which I need to “radically accept”. As you can imagine based on the above, it’s going to be a tough nut because of how tightly they interweave. Tips welcome.

rob’s Scale of Suicidal Ideations

I was having suicidal thoughts last night. It had been a day of much fear, and repeated bouts of crying. Days like that often lead me to thinking that I’ll never get better, that I can’t face 30 more years of Bipolar symptoms, etc.

That train of thought is worrisome. It shouldn’t be ignored. That will be my ultimate point. Nonetheless, not all suicidal thinking is the same. I decided, as a break from my DBT homework, to share some personal reflections on that.

My suicidal ideations come in sub-varieties. Degrees on scale – though I wouldn’t hazard a strict ordering. At the lowest level lies pondering seriously the question: Why bother being alive? To ask, that is: What are the (dis)advantages ? In my own case, I land up here very frequently.

More serious than this is feeling indifferent to remaining alive. This presupposes a fairly detached judgment on the “Why bother?” question, to the effect that, actually, there is no good reason, though there’s no compelling reason to die either. Let the chips fall, etc.

A third sub-variety that I experience is hoping that something fatal will happen to me: a car accident, a heart attack in my sleep, tipping off my boat and drowning. What usually accompanies this, luckily, is the saving recognition that I would hurt others too much if I killed myself. It would scar them permanently. So, I’m not willing to do anything to bring about my death, at this third level; but I’ve given a darker answer to my question, namely that the disadvantages of continuing to exist outweigh the advantages. My resolve, then, is to endure the pain – which, I’ve concluded, overshadows the benefits – for others’ sake.

I’m not sure whether this next one is less or more serious than that morbid mildly hoping. It is running through scenarios in my head, assessing the pros and cons of different methods. Leaping into traffic or in front of a subway would traumatize the driver. Jumping off a bridge might leave me seriously injured rather than dead, hence even less happy, and even more of a burden to my family. Drinking poison would be painful. I’d need to hoard my pills. And so on. (This is also when I notice “opportunities” for suicide: as I take a knife out of a drawer, “I could cut myself with that”; as I cross over a bridge, “I could jump off”; as I wait at a light, “I could step out”.)

It’s these last two sub-varieties which show up during my depressive cycles, as opposed to on an isolated bad day. Thank heavens.

The most serious kind of suicidal ideation, still short of an attempt, is forming an actual plan. Settling on a method, a day and time, a place. This I’ve only done three times in my life.

Again, based not on scientific studies but on both chats with fellow sufferers and on my first-person gut feelings, I’d offer this advice for friends and family about my scale. It’s the last stage which is an immediate threat. If you have reason to think that someone has reached that point, it’s the time to call the police. (Ordinarily, the advice would be to take them to Emerg, but my personal experience there, twice over, was too awful for me to recommend it.)

That said, I would say treat all of them as serious, not least because a triggering event can move a person from the mildest to the most severe very rapidly. This I know from first-hand experience. That whole idea, thankfully not so prevalent anymore, of “Ignore them, they are just seeking attention” is a terrible one. Even if a person were seeking attention in that specific way, they are somewhere on my scale already. That’s a serious thing, and at a minimum requires compassion and emotional support.